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When someone we love is hurting, it's only natural to want to help
them in every way possible. If a family member is dealing with a cardiac
disease, our ability to help can be hindered by a number of factors. But with a
little effort, we can overcome these challenges and provide the right kind of
support.
"When doctors send our patients home, we often assume that everything
we say and suggest and prescribe is going to be followed up on," admits
Dr. Cam Patterson, chief of cardiology at the University of North Carolina
Hospitals in Chapel Hill. "But there are all kinds of ways an excellent
clinical plan can be derailed."
To keep that from happening, Patterson suggests that family members do the
following:
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Understand the illness. The most common obstacle is not having enough
information on the condition. Start by consulting with the cardiologist about
your role in rehabilitation and recovery. It's also a good idea to talk
to your loved one about how much she or he is willing to share with you, and by
gauging how well she or he understands the condition.
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Manage medications and follow-up appointment. With new routines and
medications, patients can get frustrated. This is where family members can be a
huge help. Make sure you understand the purpose, dosage and side-effects of
each medication, and that you are aware of all appointments for doctor visits
and cardiac rehab sessions.
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Get active. Activity levels will be limited for most patients, but
it's important for family members to help them get on with their lives.
Reintroduce your parent or spouse to what they do on a day to day basis, like
going back to church or working on a hobby - the things that make life
fulfilling.
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Participate in lifestyle changes. Most cardiac patients have to make
significant changes in exercise and diet. Success rates skyrocket when a family
member or friend participates. For instance, the American Heart Association
reports that people are 76 percent more likely to stay on their walking program
if someone else is counting on them.
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Watch for emotional responses. It's not uncommon for cardiac
patients to become depressed or go into denial. If your loved one becomes angry
or withdrawn, or if you notice other major changes in his or her personality,
talk about it together. And if you're really concerned talk to the
cardiologist, nurses or any primary care provider. Even clergy members can
help.
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Help yourself. Since heart disease has a genetic component,
it's important for children and siblings to know their heart health
status by making an appointment with a physician. For spouses, it's
important to make sure you have your own support system - family,
friends, clergy, support groups, etc. - to help you manage the emotions
you may encounter in caring for a loved one. You can't help if
you're not healthy yourself!
"It's important to realize that your family's going to
have to make adjustments because of this severe illness, but you can't
let it get in the way of being a family," Patterson says.
Patients with serious conditions like heart disease often feel alone or
don't want to be burdens on their families. Following these steps can
help you support your loved one on the road back to a full and meaningful life.
About Cardiovascular Disease
Cardiovascular disease is a broad term that includes several more
specific cardiovascular conditions. Cardiovascular disease is the
leading killer in the US.
Common heart conditions include:
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Arrhythmias.
Irregular, or abnormally fast or slow, beating of the heart. The heart
beat is controlled by electrical impulses. When the timing or frequency
of these electrical impulses are disrupted, arrhythmias develop. Some
arrhythmias are quite serious. An example is ventricular fibrillation,
a severely abnormal heart rhythm that causes death unless treated right
away by providing an electrical shock to the heart (called
defibrillation). Others are less severe but can develop into more
serious conditions over time. A particular concern is atrial
fibrillation. Atrial fibrillation is rapid, irregular beating of the
upper chambers of the heart. The chambers can quiver instead of beating
in a regular pattern. Blood is not fully pumped out of them and may
pool and clot.
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Cardiomyopathy.
A weakening of the heart muscle or a change in heart muscle structure.
It often results in inadequate heart pumping or other heart function
abnormalities. These can result from various causes, including prior
heart attacks, viral or bacterial infections, and others.
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Congenital Heart Disease.
Malformations of heart structures, present during pregnancy or at
birth. These may be caused by genetic factors or by adverse exposures
during pregnancy. Examples include holes in the walls that divide the
heart chambers, abnormal heart valves, and others. Congenital heart
defects can disrupt the normal flow of blood through the heart.
Congenital heart defects are the most common type of major birth
defect.
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Coronary Heart Disease (CHD).
CHD is the most common type of heart disease. CHD occurs when the
coronary arteries, that supply blood to the heart muscle, become
hardened and narrowed due to the plaque buildup. The plaque buildup and
the narrowing and hardening of the arteries is called atherosclerosis.
Plaques are a mixture of fatty substances including cholesterol and
other lipids. Blood flow and oxygen supply to the heart can be reduced
or even fully blocked with a growing plaque. Plaques may also rupture
and cause blood clots that block arteries. CHD can lead to a heart
attack. Angina, the most common symptom of CHD can also occur. Angina
is chest pain or discomfort that occurs when the heart muscle is not
getting enough blood. Irregular heart beats, called arrhythmias, can
develop.Over time, CHD can weaken the heart muscle and lead to heart
failure, a serious problem where the heart cannot pump blood the way
that it should.
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Heart Attack.
A heart attack , also called a myocardial infarction may occur when
blood supply to the heart is severely reduced or completely blocked.
When blood flow is restricted the heart muscle cells do not receive
enough oxygen and begin to die. The more time that passes without
treatment to restore blood flow, the greater the damage to the heart.
This damage can cause irregular heart rhythms or even sudden cardiac
arrest or stopping of the heart beat. Death can result. Coronary artery
disease is the chief underlying cause of a heart attack. A less common
cause of a heart attack is a severe spasm of a coronary artery that
reduces the blood supply to the heart.
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Heart Failure.
This may also be called congestive heart failure or chronic heart
failure. Heart failure is a condition where the heart cannot pump
enough blood and oxygen to meet the needs of other body organs. Heart
failure does not mean that the heart has stopped, but that it cannot
pump blood the way that it should. Heart failure is a serious
condition. There is no cure for heart failure at this time, except a
heart transplant. Once diagnosed, medicines are needed for the rest of
the person's life.
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Peripheral Arterial Disease (PAD).
Hardening of the arteries that supply blood to the arms and legs. PAD
is usually the result of atherosclerosis, the buildup of plaque and
narrowing of the arteries. Blood flow and oxygen to the muscles in the
arms and legs can be reduced or even fully blocked. Painful leg
muscles, numbness, swelling in the ankles and feet, and weak pulse in
the feet are some of the signs and symptoms of PAD.
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Rheumatic Heart Disease.This
condition is damage to the heart valves and other heart structures due
to inflammation and scarring caused by rheumatic fever, which occurs
from streptococcal infection.Heart disease is an umbrella term for a
number of different diseases affecting the heart.Heart disease is a
number of abnormal conditions affecting the heart and the blood vessels
in the heart.
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